Trust Resources

No matter what stage you are with futures planning, we’ve got you covered. Split into categories, this ongoing, curated resource lists the essentials on special needs trusts and futures planning; where to get started, what documents you need to secure benefits, plus relevant news to deepen your knowledge.
Click on the “+” at each section header to view all listings. 


Financial Planning for Kids with Disabilities

Trust Director Tia Marsili talks about when and how parents should start planning the future of their child with disabilities. (e-publication, Page 28)

Disabled Americans Are Losing a Lifeline

Disabled Americans Are Losing a Lifeline, and how President Biden can help.


EMPOWER Magazine

Our in-house publication introduces you to the special needs trust, how to get started and other considerations to help you and your loved one with disabilities thrive.

The Arc of Northern Virginia: Transition POINTS

The Arc of Northern Virginia’s Transition POINTS program (Providing Opportunities, Information, Networking and Transition Support) offers families realistic, actionable information on decision making through the lifetime of their loved one with an intellectual disability.

The following guides are available:

VA – CommonHelp

Online listing for Virginia’s many social services assistance programs. Use CommonHelp to check assistance eligibility, submit applications, check or renew benefits and report household changes, or renew benefits.

Corporate Fiduciaries Are Shying Away From Special Needs Trusts

Our Special Needs Trust program remains uniquely valuable to the beneficiaries we serve, aligning with our nonprofit mission. For over 30 years, the Special Needs Trust Program is managed by experts in the disability field, with Key Private Bank as the trustee and fiduciary.

The Arc National: Futures Planning

This resource provides reliable information and assistance to individuals with I/DD, their family members and friends, professionals who support them and other members of the community on areas such as person-centered planning, decision-making, housing options, and financial planning.

A Wake Up Call For Professional Trustees and Parents

The importance of choosing the right trustee, plus the measures in place to make sure the trustee is acting in the right interests of the beneficiary.

Pooled and special needs trusts

A primer on pooled trusts, first-party and third-party special needs trust.

Why Your Will Should Name Designated Beneficiaries

Understand what “designated beneficiaries” are and how you should get started.

Planning Now: An Estate & Futures Planning Guide

This Maryland edition of Planning Now discusses the importance of planning for children and adults with disabilities; provides essential information, suggestions, and a framework for planning, with various tools and resources to assist you.

Family & Divorce Law 2020

The document covers latest trends and regulatory developments from around the world. It includes expert discussions on high conflict cases, divorce costs, valuation and division of complex assets, international family law, and child custody. Featured countries are: Dominican Republic, South Africa, Turkey and the United States.

Child Support for an Adult Child with Disabilities

Can a parent be required to financially support a child who reached the age of majority? This article describes in general terms the law throughout the United States with respect to a parent’s support obligations for a child with disabilities.

Northern Virginia Funeral Costs

The Memorial Society of Northern Virginia offers a detailed directory of funeral homes and the costs for each service.

Virginia Department of Social Services: Burial Funds

Learn how much burial funds you are entitled to, upon the death of your spouse.

KeyBank Financial Wellness Topics

Our Trustee KeyBank’s financial wellness center is a helpful guide on the basics of financial health and future planning.

Social Security Administration Supplemental Security Income

Supplemental Security Income (SSI) is a Federal income supplement program funded by general tax revenues (not Social Security taxes). It is designed to help the following who have little or no income: seniors, adults and children who are blind or have qualifying disabilities. SSI provides cash to meet basic needs for food, clothing, and shelter. Use this site to learn more, check eligibility and apply for SSI.

Social Security and SSI for People with I/DD and Their Families

This Arc’s National Policy Matters edition explores how Social Security, Supplemental Security Income (SSI), and Medicare and Medicaid related health insurance operates, the vital support they provide, and current policy proposals that may impact people with I/DD and their families.

2021 Social Security Factsheet

The latest changes to Social Security.

Applying for SSI and SSDI: Checklist

SSA’s official checklist to help you complete the online Disability application.

Help for Representative Payees and VA Fiduciaries

A guide for family and friends serving as a representative payee (“rep payee”) or VA fiduciary. Taking on this responsibility makes you a fiduciary with fiduciary duties. You are managing money or property for someone else, and must act in their best interests.

Medicaid and Medicare Dual Eligibility

DMAS breaks down how Medicaid and Medicare works, and how to apply for them.

Benefits for Children with Disabilities

A document that assesses whether the child with disabilities might be eligible for SSI or SSDI.

How to Request and Prepare for a Medicaid Appeal

This 8-page document written by Disability Rights Maryland helps Medicaid applicants and recipients know their appeal rights if their services are denied, reduced, or terminated, and it provides guidance on how to pursue the Medicaid appeal process in Maryland.

How to Appeal a Denial, Reduction, or Termination of Community First Choice Personal Assistance Services

As a supplement to the more general guide on Medicaid service appeals, this document can be used in preparing for a hearing regarding Community First Choice (CFC) personal assistance services. It outlines the eligibility for the CFC program and the types of documents and evidence that you can prepare and use in a CFC hearing.

Medicaid Waiver Practical Guide

This guide explains explain how to apply for services for people with developmental disabilities.  It will also explain what services are available, why there is a waiting list for services, who is most likely to be able to get services, who will help you, and what to expect once you are enrolled in the system.


A Consumer’s Guide to Homesharing

Homesharing is an alternative way for people to meet their housing needs that provides numerous benefits to both homeowners and renters. The guide details the scenarios, consideration factors and how to get started.

Home Repair for Elderly Program for Elderly and Disabled Adults

The program provides minor home repairs to eligible low and moderate income elderly homeowners residing in the property, as well as accessibility modifications for homeowners with disabilities.

Roommate Agreements for SSI Application

Use these template documents to support your SSI application.

Roommate Agreement TEMPLATE 1

Roommate Agreement TEMPLATE 2



Dental Resources

A listing of Virginia and Washington D.C.’s dental clinics. (as of December 2019)

Medicaid Adult Dental Program

Adult Dental Services for Virginia Medicaid members; starting July 1, 2021, adult members will have access to more services and provider choices through DentaQuest.

Maryland Healthy Smiles Dental Program

Dental services for adults between the ages of 21 and 64, who receive full Medicaid and Medicare Benefits.

Military Survivor Benefits Program

Congress passed the National Defense Authorization Act of 2015, which allows military members and retirees to irrevocably assign annuity payments from Survivor Benefit Plans (SBP) to a Special Needs Trust (SNT) for the benefit of their dependent child with disabilities. The SNT must be established as a Self-Funded (First-Party) SNT.

Navy Mutual Calculators

Navy Mutual’s calculators estimate your military survivor benefits, including SeaBAAG, Military Pension Benefits and WebCACO.

Disabled Military Child Protection Act Policy Issued

How to provide a survivor benefit for a child with a disability, and have it paid to a special needs trust for that child’s benefit.


United Cerebral Palsy The Case for Inclusion Report 2019

Covering 50 States and the District of Columbia (DC), the report is the preeminent annual ranking of how well state Medicaid programs serve people with intellectual and developmental disabilities (I/DD) and their families.

With the 2019 change to the Secure Act (Setting Every Community Up for Retirement Act), know the impact on individuals, retirement, tax, and estate planning strategies.

IRA distributions to special needs trusts The SECURE Act and Elimination of the Stretch IRA

These articles will focus on the changes to the SECURE Act and the impact on individuals and, more importantly, on the biggest provision that affects estate planning — the elimination of the “Stretch IRA”.

SECURE Act Changed IRA and Retirement Plan Inheritance Rules

Individuals who plan to leave IRA and retirement plan assets to heirs — and individuals who stand to inherit retirement assets — should understand the new rules and distribution options.

The SECURE Act and Your Retirement Savings

The legislation expands savings opportunities for workers and includes new requirements and incentives for employers that provide retirement benefits. It also restricts a popular estate planning strategy for individuals with significant assets in IRAs and employer-sponsored retirement plans.

New Retirement Law Changes Special Needs Planning

The Arc of Northern Virginia’s Special Needs Trust is a conduit trust or a see through trust. Conduit Trusts are See-Through Trusts which require any distributions received by the trust from an inherited retirement account be passed right out from the trust to the trust beneficiaries. The trust acts as a ‘conduit’ for distributions from the IRA to the underlying trust beneficiaries. We fulfill this requirement.

Paratransit & Transit Accessibility

Paratransit services are special transportation services for people with disabilities who are unable to use fixed-route public transportation for some or all of their mobility needs. Covers Accessible Fixed-Route Public Transportation, Reach A Ride Paratransit Service Directory, Regional Transit and Paratransit Systems, Services in Virginia and Maryland

Service Source Transportation Program

The program offers transportation services for people with disabilities: On Demand rides and Scheduled rides. Enrollees must be referred by an approved agency in which they are receiving services or scheduled to begin receiving services.